Development of the DME-C: A scale for detecting emotional distress in primary caregivers of patients living with advanced illness or approaching end of their lives

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Abstract
This paper presents the development of the Detection of Emotional Distress Scale in primary Caregivers (DED-C) of patients living with advanced disease or terminal illness who are receiving palliative care. The scale development process is described. For this purpose, literature has been reviewed and a theoretical framework of study as well as the characteristics of the screening tool have been established. The DED-C scale consists of 2 parts: 1) 3 questions addressed to primary caregivers, and 2) the health care professional s appreciation or observation of any external signs of emotional distress on behalf of the caregivers. The final scale was reviewed by experts and caregivers. The DED-C scale will be an appropriate tool for identifying caregivers’ emotional distress. We propose the systematic use of DED-C for early detection of and specific intervention on emotional distress.
Year of Publication
2016
Journal
Ansiedad y Estrés
Volume
22
Issue
2-3
Number of Pages
104-109
Date Published
jul
Publisher
ISSN Number
1134-7937
URL
https://www.sciencedirect.com/science/article/pii/S1134793716300288
DOI
10.1016/J.ANYES.2016.09.001